Support Groups: Self Help Is The Best Help

Also known as self-help, peer support and mutual aid groups, these groups can be founded by several categories of people: for instance, health care professionals who believe that patients need to learn to help themselves; by individuals who are convinced that professionals alone can't meet all their needs; or by advocates for persons with specific diseases

Sharing and Learning to Cope With your Problems
Support groups act as a complement to medical care - they definitely do not replace your doctor! The very act of sharing the emotional side of an illness and exchanging helpful advice can encourage recovery or simply make it easier to cope with your problems. For example, if you've just been diagnosed as having cancer, you may hide your anxiety and fear from our family and friends to avoid upsetting them. In turn, to avoid saying the wrong things, they may say nothing at all. These barriers of silence tend to melt into refreshing candour when you meet others who are coping with a similar burden. Similarly, if you're caring for someone with Alzheimer's disease, sharing your experiences with other caregivers can help you recognize that occa- . sionally feeling resentful and sad is normal.eases.

Pearls Of Advice

Many group members can often offer pearls of practical advice, which help you to cope better with your illness. For example, infertile patients need to take daily injections when undergoing in vitro fertilization (IVF) treatment. One patient discovered that if she applied a ice cube to the site before the shot, the area would get numbed, and the injection wouldn't hurt as much. She shared her knowledge with others in the group so that they could also benefit from her experience. Support groups also allow you to gain more control over your life because you can learn from others who have already been through what you are going through now. An additional bonus is that they can help you find the best doctor or hospital for your particular problem, because you can learn from other members' experience with various doctors - both good and bad! .

Live Longer
Besides offering moral support, a good support group may actually help you live longer! Researchers from Stanford University and the University of California at Berkeley studied 86 women with advanced breast cancer for 10 years. They found that the women who joined a support group outlived those who did not by an average of nearly 18 months. .

Dispel Many Myths and Misconceptions
.Support groups aim to achieve many goals. Primarily, they provide compassionate and informed help to people experiencing hardship and agony due to an illness. They can also help increase visibility about issues which concern them by educating the public and pre
scenting their viewpoint through the media. In .the US, many support groups act as powerful lobbies. For example, groups of parents of children with mental disability have been abl to convince law-makers to pass legislation which prevents discrimination against disabled citizens. Many groups have also been successful in raising funds to help promote medical research into their disease. Others have published books and leaflets about their illness in order to disseminate information more widely, thus helping to dispel many myths and misconceptions about the disease among the general public.
Support groups help primarily because they make you realize that 'you are not alone'. An additional pleasant bonus many people discover is that by helping other people in their time of need, they learn to help themselves! The very process of being able to ventilate your feelings and to get and provide emotional support can prove to be a healing experience. .

Veterans And Newcomers
Try and identify a support group which contains a mix of veterans and newcomers at different stages of coping with an illness. People who have lived with health problems forbears usually develop more insight and have more information to offer, while new / entrants' offer another perspective. The group of your choice should consist of people with whom you feel comfortable, and leaders who emphasize, by gently drawing out the shy members and keeping in check those trying to dominate. A good group should have a stable track record of meeting the needs of all the members.
Avoid
Not all support groups are reliable. Don't be fooled by groups that put their interests before yours. Avoid groups that (1) promise sure cures and quick solutions; (2) urge you to stop prescribed treatment and recommend a single solution to your problem; (3) insist that you reveal private or sensitive information; or (4) charge high fees or compel you to buy certain products, Most support groups are free, or support themselves by collecting voluntary donations or charging modest membership fees to cover expenses such as refreshments or production costs of leaflets/brochures.
Reach Out For Help
Many good doctors are happy to refer their patients to such groups. They realize that support goups provide valuable emotional support, which doctors, as busy professionals, simply cannot, because of time constraints. Unfortunately, misconceptions about support groups prevent many people from making use of this valuable source of help. Some patients become anxious that joining a support group might cause them to dwell even more on their problem, while others may feel that their illness is too private or personal or traumatic to share with a group of strangers. You may also believe that you can handle the crisis on your own. In reality, any serious illness is too traumatic not to share with others, and there is nothing wrong about reaching out for help. Such a step is definitely not a sign of weakness. A support group simply provides a safe, warm and supportive environment; you need never say a word if you don't want to.
Fortunately, Indian patients are realizing the importance of networking amongst themselves, and, presently, many support groups have sprung up all over India for illnesses ranging from Alzheimer's disease, cancer, infertility, muscular dystrophy, multiple sclerosis to thalassaemia.
However, a major problem in India is that the culture of self-help is still very new. Most patients are passively dependent on their doctor, and they still expect their doctor to do every thing for them. Remember, however, that the more you help yourself, the easier it is for your doctor to help you! After all, if patients will not look after their own inJ:erests, then who will?